Wednesday 22 August 2012

As I haven't posted for a while I thought I would write something today.
 Summer is here. Its hot and sticky and about 32C outside.
 Did have some fun while getting my medication, I now have to make sure I order it at least 5 days before I need it, rather than the day before. Which in real terms means a week. Order it on Monday so I have it for next Monday. I now make sure I have eight tablets left when I order just in case.

Had another blood test last week, so waiting for the results of this. It looks like I will be having one of these every three months. The test is looking for the Molecular response to the treatment and is often reffered to as the BCR-ABL blood test. It can detect one leukaemia cell in up to one million (1,000,000) normal blood cells. It does this by measuring a substance (transcript) made by the BCR-ABL gene in the leukaemia cells. The last one I had showed a tiny amounts of this substance.
 Apparently even if its all clear I still have to take the Glivic for how long I don't know.

 I have found that writing the date when I start a new box of tablets, on the box, helps me to know if I have taken them. I actually forgot one day, and made sure by checking the date I had written. What I did was take the tablet which was 4 hours later then normal and then the next day took the tablet 3.5 hours later than normal and so on until I got back to the right time. writing the date certainly helps, as I often can't remember if I have taken a tablet or not. Also some forward planning is required as I need to know if there is a chance I won't be at home at lunch time. If so I have a small metal pill pox where I put a tablet into and then into my pocket. Looks much nicer than those plastic ones which tend to be quite big anyway.
My next hospital visit is early September, so will probably write more then.