Better late than never

Went to the clinic with a new set of results on Tuesday 12th March.
They where a little higher, previous ones where 0.03 this one was 0.09 so I have to go back in a months time to see if its a glitch or I need to have my medication changed to something else. They may also do a bone marrow sample, oh deep joy at the thought of that.  The cause of the glitch maybe that I had a very bad cold, took about 4 to 5 days to clear up. The biggest problem is not really being able to take extra medicine, especially paracetamol based. As both paracetamol and Glivec (the Leukemia medication) are both processed by the liver. There has been several cases where someone has died while on Glivec and took paracetamol. 
Well I go  on the 25th to have a new blood test and back to the clinic 4 weeks later, I will get the results about the 17th April then the following week its of to the clinic again. So fingers crossed.

Clinic Visit

Looks like I've stabilised still positive for the Philadelphia chromosome. Which means no increase in the number of Philadelphia chromosomes since last time or decrease either. Have another test in about 3 months time. I guess at that one they will decide if I need a bone marrow sample taken.
 Did a small bit of Chrimbo shopping after seeing the Doctor. There is now a Primark in Alicante and its only 5 minutes away from the clinic.

Yeah blood test

Finally got my blood test done and also booked my visit to the clinic for December

Chemists are on Strike

The chemists are on strike. Which is causing a few headaches.
 Been trying for a week now to get a blood test. Hopefully next Wednesday I will be able to get one, as I pick up my medication, which came in today, but I was unable to pick it up. They did say they would open especially for me tomorrow if it was urgent which I thought was nice.
Still feel tired around lunch time, and sometimes I need to lie down.
Not much to say really until I go to the specialists in December. So fingers crossed for that one.

Drugs and Doctors

Went to the clinic last Tuesday with my blood test results, everything is going well and the doctor is pleased with my progress. Its been almost a year since I was diagnosed leukemia.
Also got my new batch of medicine this week as well. Having to order at least 8 days before.
My next appointment at the clinic is in December, so will need to have a blood test 2 weeks before this.

As I haven't posted for a while I thought I would write something today.
 Summer is here. Its hot and sticky and about 32C outside.
 Did have some fun while getting my medication, I now have to make sure I order it at least 5 days before I need it, rather than the day before. Which in real terms means a week. Order it on Monday so I have it for next Monday. I now make sure I have eight tablets left when I order just in case.

Had another blood test last week, so waiting for the results of this. It looks like I will be having one of these every three months. The test is looking for the Molecular response to the treatment and is often reffered to as the BCR-ABL blood test. It can detect one leukaemia cell in up to one million (1,000,000) normal blood cells. It does this by measuring a substance (transcript) made by the BCR-ABL gene in the leukaemia cells. The last one I had showed a tiny amounts of this substance.
 Apparently even if its all clear I still have to take the Glivic for how long I don't know.

 I have found that writing the date when I start a new box of tablets, on the box, helps me to know if I have taken them. I actually forgot one day, and made sure by checking the date I had written. What I did was take the tablet which was 4 hours later then normal and then the next day took the tablet 3.5 hours later than normal and so on until I got back to the right time. writing the date certainly helps, as I often can't remember if I have taken a tablet or not. Also some forward planning is required as I need to know if there is a chance I won't be at home at lunch time. If so I have a small metal pill pox where I put a tablet into and then into my pocket. Looks much nicer than those plastic ones which tend to be quite big anyway.
My next hospital visit is early September, so will probably write more then.

F.I.S.H but no chips

Went to the clinic for my F.I.S.H results. This is the test they do on the bone marrow. Its all good. Almost no Philadelphia chromosomes. So I don't have to go back until September now.
 Been doing Tai Chi for almost a month now. I think this is definitely a good thing. I can't believe its taken me so long to find a class.
 Well the summer is finally here. Its about 30ºC during the day and about 25ºC during the night and its due to get hotter.